Pain and symptom management |
The child's pain is treated |
Other troubling symptoms are treated |
Clinical staff respond quickly to concerns about the child's symptoms |
Communication |
Clinical staff provide information in a way that can easily be understood |
Clinical staff prepare caregivers/family members for what might happen to the child |
Clinical staff inquire about and respect caregivers'/family members' wishes and decisions |
Clinical staff create an atmosphere in which caregivers/family members feel comfortable asking questions about their child |
Support of decisions to withdraw life-sustaining treatments |
Caregivers/family members have opportunities to discuss options about the child's care with the healthcare team |
Conflicts between caregivers/family members and clinical staff about the best way to care for the child are avoided |
Privacy |
Caregivers/family are given privacy with the child near the end of the child's life |
Physical and instrumental needs of family |
Caregivers/family members are able to easily meet their basic physical needs (accessible bathroom, showers, affordable meals, places to stay, parking, etc) |
Emotional needs/support of family |
Clinical staff demonstrate that they cared about the child as an individual |
Clinical staff support the caregivers/family emotionally |
Caregivers/family are given opportunities to be near their child |
Fulfilling the parental role |
Clinical staff help caregivers/family find ways to touch, hold, and/or connect with the child |
Spirituality and religious/cultural issues |
Hospital clergy and chaplains are available |
Staff inquires about and respects the family's spiritual and/or religious needs |
Continuity/coordination of care |
Nurses and doctors pass information about the child onto the next shift or rotation |
Grief and bereavement |
Clinical staff help caregivers/family create memories (such as handprints, lockets of hair, photographs) of the child |
Upon the child's death, the caregivers/family are allowed to stay with the child for as long as they wish |
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