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Psychometric properties of measures designed to assess common mental health problems and wellbeing in adults with intellectual disabilities: a systematic review
M. Patel, J. Y. Lee, K. Scior
doi : 10.1111/jir.13018
Multiple measures of mental health problems and mental wellbeing for adults with intellectual disabilities are available, but investigations into their reliability and validity are still in the early stages. The aim of this systematic review was to provide an update to previous evaluations of measures of common mental health problems and wellbeing in adults with mild to moderate intellectual disabilities (ID).
Exploring the psychometric properties of the Intellectual Disability versions of the Short Warwick–Edinburgh Mental Wellbeing Scale and Kidscreen10, self-reported by adolescents with intellectual disability
J. Davison, S. Maguire, M. McLaughlin, V. Simms, B. Bunting
doi : 10.1111/jir.13016
There are no validated self-report measures that can be used to assess health and wellbeing in adolescents with intellectual disability (ID).
Determining the neurocognitive profile of children with tuberous sclerosis complex within the Western Cape region of South Africa
N. M. Berghoff, J. M. Wilmshurst, T. A. Page, M. Wessels, B. Schlegel, S. Malcolm-Smith
doi : 10.1111/jir.13009
Tuberous sclerosis complex (TSC) is a multisystem genetic disorder associated with a wide spectrum of cognitive impairments that can often result in impaired academic, social and adaptive functioning.
A new measure of physicians' erroneous assumptions towards adults with intellectual disability: A first study
A. Bacherini, S. M. Havercamp, G. Balboni
doi : 10.1111/jir.13013
Incomplete knowledge and unfamiliarity with intellectual disability (ID) contribute to erroneous assumptions of physicians towards ID, which negatively impact the health equity of people with ID. This study aimed to identify the erroneous assumptions that, based on the ID stakeholders' perceptions, were the most prevalent in physicians and damaging for the healthcare of adults with ID, verify their unidimensionality and that no personal characteristics of ID stakeholders were associated with their ratings of erroneous assumptions' prevalence and damage.
Evaluation of peer-mediated systems navigation for ageing families of individuals with developmental disabilities
C. Marsack-Topolewski, S. Milberger, E. Janks, N. Anderson, M. Bray, P. S. Samuel
doi : 10.1111/jir.13024
As individuals with intellectual and developmental disabilities (I/DD) age, services often diminish, with many family caregivers experiencing challenges finding and navigating services. The purpose of this study was to examine the benefits of a state-wide family support project for ageing caregivers (50+) of adults with I/DD in accessing and using services.
Anticipatory postural adjustments and kinematic analysis of step ascent and descent in adults with Down syndrome
C. Ferrario, C. Condoluci, M. Tarabini, C. M. Manzia, M. Galli
doi : 10.1111/jir.13022
Step ascent and descent is one of the most common daily tasks. Although it is generally considered a rather simple movement, it may not be so easy for participants with Down syndrome.
Can the Behaviour Intervention Plan Quality Evaluation, Version 2, be simplified for use by stakeholders with limited experience of positive behaviour support?
M. Vassos, T. Carberry, F. Davis, S. Wardale, K. Nankervis
doi : 10.1111/jir.13020
Behaviour support plan (BSP) quality auditing tools like the Behaviour Intervention Plan Quality Evaluation, Version 2 (BIPQEII), assess the quality of a BSP from the perspective of technical compliance with behavioural principles.
Psychometric properties of measures designed to assess common mental health problems and wellbeing in adults with intellectual disabilities: a systematic review
M. Patel, J. Y. Lee, K. Scior
doi : 10.1111/jir.13018
Multiple measures of mental health problems and mental wellbeing for adults with intellectual disabilities are available, but investigations into their reliability and validity are still in the early stages. The aim of this systematic review was to provide an update to previous evaluations of measures of common mental health problems and wellbeing in adults with mild to moderate intellectual disabilities (ID).
Exploring the psychometric properties of the Intellectual Disability versions of the Short Warwick–Edinburgh Mental Wellbeing Scale and Kidscreen10, self-reported by adolescents with intellectual disability
J. Davison, S. Maguire, M. McLaughlin, V. Simms, B. Bunting
doi : 10.1111/jir.13016
There are no validated self-report measures that can be used to assess health and wellbeing in adolescents with intellectual disability (ID).
Determining the neurocognitive profile of children with tuberous sclerosis complex within the Western Cape region of South Africa
N. M. Berghoff, J. M. Wilmshurst, T. A. Page, M. Wessels, B. Schlegel, S. Malcolm-Smith
doi : 10.1111/jir.13009
Tuberous sclerosis complex (TSC) is a multisystem genetic disorder associated with a wide spectrum of cognitive impairments that can often result in impaired academic, social and adaptive functioning.
A new measure of physicians' erroneous assumptions towards adults with intellectual disability: A first study
A. Bacherini, S. M. Havercamp, G. Balboni
doi : 10.1111/jir.13013
Incomplete knowledge and unfamiliarity with intellectual disability (ID) contribute to erroneous assumptions of physicians towards ID, which negatively impact the health equity of people with ID. This study aimed to identify the erroneous assumptions that, based on the ID stakeholders' perceptions, were the most prevalent in physicians and damaging for the healthcare of adults with ID, verify their unidimensionality and that no personal characteristics of ID stakeholders were associated with their ratings of erroneous assumptions' prevalence and damage.
Evaluation of peer-mediated systems navigation for ageing families of individuals with developmental disabilities
C. Marsack-Topolewski, S. Milberger, E. Janks, N. Anderson, M. Bray, P. S. Samuel
doi : 10.1111/jir.13024
As individuals with intellectual and developmental disabilities (I/DD) age, services often diminish, with many family caregivers experiencing challenges finding and navigating services. The purpose of this study was to examine the benefits of a state-wide family support project for ageing caregivers (50+) of adults with I/DD in accessing and using services.
Anticipatory postural adjustments and kinematic analysis of step ascent and descent in adults with Down syndrome
C. Ferrario, C. Condoluci, M. Tarabini, C. M. Manzia, M. Galli
doi : 10.1111/jir.13022
Step ascent and descent is one of the most common daily tasks. Although it is generally considered a rather simple movement, it may not be so easy for participants with Down syndrome.
Can the Behaviour Intervention Plan Quality Evaluation, Version 2, be simplified for use by stakeholders with limited experience of positive behaviour support?
M. Vassos, T. Carberry, F. Davis, S. Wardale, K. Nankervis
doi : 10.1111/jir.13020
Behaviour support plan (BSP) quality auditing tools like the Behaviour Intervention Plan Quality Evaluation, Version 2 (BIPQEII), assess the quality of a BSP from the perspective of technical compliance with behavioural principles.
